Showing posts with label fibro. Show all posts
Showing posts with label fibro. Show all posts

Monday, 28 June 2010

chronic pain - medication v meditation

if you have read some of my other posts you will know that pain plays a big part in my life. due to me/cfs/fibro everyday my muscles and joints are achey and sore - a similar feeling to when you have the flu. some days are worse than others with certain parts of my body felling pain that may be throbbing, hot, deep or piercing. sometimes even just typing at the computer for a while can make my pain worse or bring on muscle weakness. (impaired ability to sustain force during and after repetitive muscle exercise) other times too much activity like bending, standing too long or walking can bring on a 'flare up' in my pain. this will be more than familiar to the majority of people affected by me/cfs/fibro - we can all push our activities a little too much (especially if we have nobody to help us with day to day things that need to be done, or we are enjoying an activity) and pay for it later.

after a long time suffering without much help, my doctor eventually sent me to the pain clinic at stobhill hospital. (like most nhs services there was a long waiting list) i had already tried amitriptyline which helped slightly but left me feeling groggy and totally out of it all day. the dr at the clinic prescribed gabapentin, building up the dosage over 6 weeks. this offered me no pain relief but gave me more side affects that were awful including yet again that groggy feeling, this time with depression thrown in. (if it did not trigger depression it most certainaly made it worse)at my latest appointment last week, i was told i would be prescribed yet another medication to try (this on will be similar to amitriptyline but fingers crossed, should have less side affects.) i am also wary of long term use of painkillers like co-codamol which i am meant to take daily, but don't always help relieve my pain anyway.

so i have also been looking into other ways that may help my pain. i tried accupuncture sadly without any success, although it has been known to help many others. the nurse at the pain clinic told me that a tens machine may help, however it can only be used in one area at a time and my pain is more general. it still may we worth discussing this with my gp. when using a tens machine small electrical pulses are delivered to the body via electrodes on the skin. this is thought to affect the way that pain signals are sent to the brain, if pain signals are blocked we may experience less pain. i have also read about natural pain helpers including supplements of magnesium, vitamin b12, malic acid, omega 3s and vitamin d. i have discussed these with my own gp and dr at the homeopathic hospital and both say that they don't see any advantage in taking supplements. this is a bit of a surprise to me, and i am not sure i agree that i get sufficient nutrients in my diet alone, especially when i am often to poorly to feed myself properly! on a limited budget, like many people affected with me/cfs it's not easy to stock up with proper supplements.

the other avenue i have explored for pain relief is meditation. i have previously mentioned this is one area with lots of research showing benefits for chronic pain. i have been reading'living well with pain and illness' by vidyamala birch, founder of breathworks, and i am planning to go on one of her courses later in the year. vidyamala herself has suffered from chronic back pain for over 30 years, now a wheelchair user she shows that by developing a calm, mindful awareness of your body in each and every moment it is possible to let go of frustration and distress. this book is an inspiring, practical guide to living with and managing chronic pain and illness. vidyamala says:

''its easy to get locked into aversion and distraction if you're living with pain as a fixed and hard 'thing'-a monster lurking in the shadows that dominates your life because you fear it. that's where mindfulness comes in. the awareness you can develop through mindfulness is steady, calm and kind, and it's subtle and precise enough for you to notice the different elements of an experience. paying attention to a painful sensation, for example allows you to investigate it, to explore it's texture and to see it for what it is, rather than what you imagine it to be''.

i am also a big fan of the wildmind which has many articles about the benefits of meditation for chronic pain like this one. i have found that through regular mindfulness meditation i cope better living with daily pain, and for that reason would encourage anyone who who struggles with chronic pain or illness to practice it.

Thursday, 18 March 2010

odd socks

my life with cfs/me/fibro lately::wearing odd socks (and not even noticing for ages), feeling so happy when i'm lucky enough to have the energy to get dressed at all (even if that means wearing odd socks as that's all that's clean!), not remembering anything i did the previous day, trying to not get too upset by ignorant folk who do not understand (or even want to) my illness and can say hurtful things, feeling like i'm climbing mount everest when i'm only climbing the stairs, having to give up my prescription pain medication even when it helps a bit as the side affects far outweigh the benefits, reading many pages of a book before realising i have read it before, having such a fuzzy brain that i miss my stop on the train to my well being course and having to go all the way back, burning a pot of soup yet again by forgetting it's cooking and being sick and tired of being sick and tired!

Tuesday, 20 October 2009

confused?

i have already mentioned all the recent news regarding the latest findings on the possible causes for cfs and fibro. are you as confused as me? what is XMRV and what is a retrovirus anyway? most importantly what does the discovery mean to us? i found this helpful on adrienne dellwo's blog.